As my mom mentioned in her first post, we're going to focus on looking for the positive things that are happening. While I learned that I most likely have a mid-grade 3-4 glioma tumor, which is a chronic tumor that I will battle for the rest of my life, it is operable. That's a good thing as the chemo therapy is most effective when the tumor size can be reduced from the start. So, I have three options:
1 - do nothing and continue to see my speech and language skill deteriorate, along with ongoing vision problems, and my lifespan would be shortened. How long... well the dr. could not answer that question.
2 - have a biosopy taken, determine the tumor type, and treat with chemo. Again, the same lifespan questions exist.
3 - do surgery, proceed with chemo. If I do surgery, it will be "awake brain surgery". There are only 2 dr.s in the metro area that do this and Dr. Clough is one of them. (Dr. Clough by the way seemed very knowledgeable, he passed the "Grandpa" test, from my Grandpa who is a retired doctor, and he's really cute... my own version of McDreamy.... sorry Greg ;o) This option has the most chance of increasing my lifespan. Chemo would most likely last for 2 years, maybe longer depending on how the tumor responds.
Dr Clough could not guarantee that I would pull through the surgery without further disabilities. While that is not what I wanted to hear, I understand. He has also referred us to an oncologist at KU, Dr. Sarah Taylor. We need to call her today.
I'm leaning toward the surgery. I want to live. I want to survive. And I want to marry the love of my life. While it appears that will not be anytime soon, it will happen someday. Dr. Clough would like to get the surgery scheduled for a couple weeks out. My hospital stay would be between 3 - 5 days, depending on any unplanned issues that could possibly surface. I think the surgery will be at St. Joseph.
(since I've having pretty major problems with word finding and typing, I'm telling my mom what to share in this blog update...and probably any future ones)
Thank you to everyone for your love and support! I'm determined to get through this... and as my little sister say's... "I will Survive!"
Lindsey. Your experience from the first time is only going to add to your strength to beat this a second time. My thoughts and prayers are with you! Mr. Brewer (the 7th grade one :) )
ReplyDeleteLindsey you are such a special person and so strong. I know your positive attitude and outlook will help you through this! You have an amazing family and support system there as well. You know you can call me ANY time for ANY thing and I will be there to help! Stay strong!
ReplyDeleteI'm sending hugs and prayers your way!
Love ya Girl,
Mrs. Griffin :)