In the car last night on the way home from T.J. Max, Lindsey said to me "I'm losing my voice." Well, her voice is fine so I replied "Your voice sounds great." She corrected herself and said "No words" She is losing her words.....
And that is correct. Her vocabulary is declining. She sits more quietly. We have noticed this more since Thurday, when the headaches started getting worse. We switched from the hydrocodone to higher doses of IB Profen so at least she is not sleeping all the time. Saturday and Sunday Lindsey was up most of the day with only a short nap on Saturday. Sunday after church a few friends took her to lunch, which she really enjoyed.
Lindsey was looking forward to going to church camp, at Camp Wilderness, on the 19th for a couple of days. She shared with a friend at church that it will depend on what's going on with her headaches. I also wonder if shes unsure about going since can not communicate as clearly.
So... just for a minute. Close your eyes and imagine trying to communicate and you can't. Close your eyes and imagine knowing that what is going on inside of you will most likely take you sooner than you had planned. Your dream bubble has a large leak in it. While I've been trying to stay positive and focus on the good, today has been hard. I miss my Lindsey conversations and I absolutely hate seeing what the tumor is slowly doing to her.
This journey no parent should have to walk.... I'm thankful that it's a journey I'm not walking alone.
as a parent, I cannot even contemplate what you are going through. I pray for lindsey and your family daily! w/2 jobs and fulltime motherhood there is little time for me to come see lindsey etc... however please know I am praying. ~Be Blessed and Be a Blessing~ Becky Mulford
ReplyDeletesending lots of hugs your way....
ReplyDelete