August 30, 2010
Head for the Cure 5k
God graced us again. Sunday morning was beautiful and Lindsey's determined spirit got her there at the race to see the wonderful people who came out to support her and support finding a cure for brain cancer. Lindsey was a recipient of one of the five Keeping the Faith awards and the Lace up for Lindz team received an award for having the 2nd highest number of participates. Our final count was 186.
Regarding Lindsey's current health issues....
Anti-seizure medication was prescribed on Saturday, with some trepidation due to Lindsey's sensitivity to the drugs. Within hours, personality changes surfaced. While she is not mobile at this time, it didn't stop her from trying. Twice I found her on the floor next to the bed as she attempted to get up. The 2nd time she engaged me in a conversation stating "Mom, I need to talk with you about my diagnosis." We proceeded to have a disjointed conversation about many things as she attempted to explain to me a dream, a very real dream, she was having.
To help to keep her safe, Hospice delivered a bed with railings. Sunday brought on difficulting keeping food down, along with sporadic, dis-jointed and random conversation. A call into Hospice resulted in stopping the new medication for 24 hours. We'll assess the changes and develop a new plan to combat the seizures.
With Lindsey's weakened right side, physically caring for her is becoming more challenging. She is not able to walk or stand by herself any longer. Thank goodness we had the strength of Todd this weekend so that he and Bob could carry Lindsey up/down the stairs. Lindsey's bedroom will be her primary location going forward. We've moved things around a bit to make room for a twin mattress on the floor so that one of us can sleep in her room at night. Tonight sleep is intermittent as I rub her back and respond to her many random comments and conversation.